The Next Chapter: Got
a Spare? On Friday, I should be donating
a kidney (my left) to a wonderful person I don’t know and I couldn’t be happier
about the prospect!
Well, if you are reading this you mostly know that my
beautiful son, Scott, died 4 years, 3 months and 25 days ago AND that Scott was
an organ, eye and tissue donor. Our
family has had quite a journey since that time both through our grief and in
through the hope we have found in God and in Scott’s donation. While Rich and I both always had a pink dot
on our license we never gave much thought to what it would be like “if” we ever
died and became a donor. We certainly
never thought about what it would be like if one of our kids did. But, as God puts our path in front of us we
are walking this journey and we are following the road in front of us.
Recently, it has taken another turn that most I NEVER would
have expected but I am following the path as God has led me here. Many months ago, I began the process of being
evaluated to become a living kidney donor.
I put it forth that if it was meant to be, God would take care of
everything. Well, he did and if all
continues to go forward this Friday, September 18, 2015 I will be giving my
right kidney away to a stranger. I
couldn’t be more excited at the thought that 4 families will receive the gift
of life next week (I am kicking off a four person chain) and their families
will not have to suffer the loss of a loved one because an organ was not
available. Now, before you get all
worked up about my safety, let me explain the process so far.
Evaluation: If you
would like to know how healthy or unhealthy you are just go through the kidney
donation evaluation process. My dad used
to sing/read to me “Alice’s Restaurant” and as I was going through the weeks
and days of evaluation I kept remembering this one section. If you know my dad, imagine him telling you
this in his best “Walt Johnson/Arlo Guthrie” voice.
“Proceeded
down the hall, gettin' more injections, inspections, detections, neglections, and all kinds of stuff that they was doin' to me at the thing There, and I
was there for two hours...three hours... four hours... I was there
for a long time goin' through all kinds
of mean, nasty, ugly things, and I was just havin' a tough time there, and
they was inspectin',
Injectin', every single part of
me, and they was leavin' no part untouched!
While nothing in my evaluation was bad, it was through and I
would not describe it as fun by any means but certainly educational. The last thing a doctor will do is remove a
kidney from a donor if it will cause injury to them later on down the
road. I have had blood tests, blood
pressure tests, EKG’s, CT Scans, X-rays, Social Worker interviews, and Psych
Evaluations. Rich had to be evaluated to
make sure he was in support. Marissa has
been included every step of the way. We feel we are ready to embark on this
journey.
Once my evaluation was complete and the team of
professionals decided I was healthy (body, mind and soul) to donate they put my
information into a system to find a match.
In my case they found a match who had another person who was a willing
donor but not a match for them. That
starts the chain-there were 3 others who had willing donors who they found
another match! Thus, through one person
(me) donating, four people will receive the gift of life through this process.
Now, let me spend some time answering some of the questions
I have gotten since I’ve started sharing my decision with those I love.
1.
Are you doing this to mourn Scott? No, while Scott led me to a place to
understand that 22 people DIE every day because there are not enough organs
available for transplant (and I am grateful that he taught me this lesson) my
donation is to practice what I preach. I
ask people every day, “If your son/daughter needed a kidney, wouldn’t you want
someone to step up and give one?”
YES! I would so I am stepping up.
2.
What if you need a kidney later on? The beautiful part about our allocation
system is that if I willingly step up to be a living kidney donor and later
need a transplant, I will go to the top of the waiting list. HOWEVER, the likelihood of that is minimal. I have no family history of things leading to
renal failure, I understand the small lifestyle adjustments I need to make
(good by Advil and Aleve), and the evaluation process checked for factors to
make sure I am not taking unnecessary risks.
3.
Do you want to meet your recipient? When I started this process we had not met
any of Scott’s recipients and now that we have I don’t feel any
differently. A gift given is a given
without expectations or conditions. If
the person that receives my kidney would like to meet, I’d be happy to but if
they would rather remain anonymous, that’s okay. I totally understand and respect their
choice.
4.
What if the person who receives your kidney
dies? While I am doing this to give them
more time to live and love I understand that many things are out of our control
and in God’s hands. I have Faith that
God has all things in control. I would
be sad for them but not angry or upset.
5.
Not every person who gets a transplant is
compliant (follows orders for care), how would you feel if they don’t take good
care of your kidney? I hope they do, I
hope this is another chapter in their life and it is a good one. But, a gift given is a given without
conditions.
6.
Are you scared?
What if you die, it is surgery?
First, I am not scared. Not
excited for the actual surgery-that won’t be fun but I feel healthy and strong
with a wonderful support system going.
IF I die (although the center my donation is taking place at has NEVER
had a donor pass away) I am ready. I
know that I’ll be with Jesus if I die and that makes me less fearful.
7.
You know it is going to hurt, don’t you. Well, this is where my sarcasm wants to do
overtime! Of course I know, I work with
many transplant recipients, living donors and their families (Donate Life
Ambassadors) many of them have been here to answer my questions. At the transplant center I have a donor advocate,
transplant coordinator and a whole team explaining every step to me.
8.
Can you change your mind? Yes, right up until the time I go “under” I
can change my mind. I can let my
advocate know and the process will end.
No judgement, no pushing, and no manipulation it is that easy to change
my mind.
9.
How long will you be out of work? Well, the doctors say it “could” be four to
six weeks. I intend to be back in three
weeks but I have done all the paperwork to take as much time as I need. I’m lucky to have all the support I do!
S
See you all on the flip side! Thank you for all the prayers and good thoughts! They will carry me through this process!